TraCS Registry Research Forum

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Start:
April 24 @ 7:30 am
End:
April 24 @ 8:30 am
Category:
,
Contact:
NC TraCS Institute
Phone:
919-843-5365
nctracs@unc.edu
Venue:
Chapel Hill
Room:
Brinkhous-Bullitt Room 219
Address:
Chapel Hill, NC 27599 United States
Audience:
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TraCS Registry Research Forum

Sharing best practices, successes, and challenges of patient registry research at UNC

DATE: Thursday, April 24, 2014

TIME: 7:30 – 8:30 AM

LOCATION: Brinkhous-Bullitt Room 219

Agenda

1. Key design principles of patient registries: Conversation based on a Scotland cystic fibrosis registry described in “The How (and Why) of Disease Registers” by Anil Mehta
2. Spotlight on lessons learned from a UNC or RTI registry: Our Fragile X World
3. Plan for future meetings and future UNC registry “spotlights”

Please RSVP by sending an email to Lisa Gehtland, MD (lgehtland@rti.org).

The NC TraCS Institute, is the integrated home of the NIH Clinical and Translational Science Awards (CTSA) program at UNC-Chapel Hill, grant 1UL1TR001111. The CTSA program is led by the NIH’s National Center for Advancing Translational Sciences (NCATS).


More Info: http://tracs.unc.edu/index.php/calendar?eventId=1541&controller=event&task=individualRegister