DATE: Thursday, April 24, 2014
TIME: 7:30 – 8:30 AM
LOCATION: Brinkhous-Bullitt Room 219
1. Key design principles of patient registries: Conversation based on a Scotland cystic fibrosis registry described in “The How (and Why) of Disease Registers” by Anil Mehta
2. Spotlight on lessons learned from a UNC or RTI registry: Our Fragile X World
3. Plan for future meetings and future UNC registry “spotlights”
Please RSVP by sending an email to Lisa Gehtland, MD (firstname.lastname@example.org).
The NC TraCS Institute, is the integrated home of the NIH Clinical and Translational Science Awards (CTSA) program at UNC-Chapel Hill, grant 1UL1TR001111. The CTSA program is led by the NIH’s National Center for Advancing Translational Sciences (NCATS).
More Info: http://tracs.unc.edu/index.php/calendar?eventId=1541&controller=event&task=individualRegister